Twenty
years ago I was diagnosed with Essential Tremor. Last year I agreed to donate
my brain to the University of Texas Southwestern’s research into the shared symptoms
of Essential Tremor, Parkinson's, and dementia.
I
paid no attention to dementia symptoms until I began to track some disturbing episodes
on my day-to-day life.
After
working as a bi-weekly columnist for the North County Times,
followed by several years of posting my The Riehl World blog
in the Oside News and OB Rag, digital newspapers, I discovered I
had lost my ability to find words to put together.
Thanks
to voice recognition technology, which I am using at the moment, I have been
able to occasionally write pieces like this one.
Here
are the signs in my daily life that led me to schedule an appointment for a
dementia test with my doctor.
I
understand that forgetting little things, like where I placed my glass of water
or my eyeglasses, is common among people of my age. But it became troubling to
learn from Karen that when I said or did something which had been completely
erased from my mind, it became troubling.
One
morning, while brushing my teeth, I decided to go to the next room to get my
bottle of water. When I returned to the bathroom, I discovered the TV remote in
my hand.
An
hour later I was folding clothes taken from the dryer to put into the drawers
in the bedroom. After matching socks to put together in a drawer, I was
disturbed that I had two undershorts that did not match, I checked the dryer to
see if their matches had been left behind, before realizing I only wear one
pair at a time.
In
the middle of a conversation, I often have to stop, searching for the right
word. But more worrisome have been the times I’ve had to ask Karen, “Where are
we going?” while we were on the way to the store, as planned.
One
morning, again while I was in the bathroom. I looked up to see beneath the
mirror a tube of Sensodyne. I stared at it, struggling to remember what it was
for. Having used a tube of prescription medicine to treat my facial dermatitis,
I wondered if I should smear the toothpaste on my face, before spotting my
toothbrush..
One
morning, when I got into the car to drive to the store. I stepped on the brake
and attempted to shift gears. When the engine did not start, I worried that the
battery was dead. For a moment I did not realize I needed to simply step on the
brake and push the ignition button.
After
returning from the store with two boxes of cereal, I put them on a chair, then
checked the kitchen to see if they were there. When I didn’t find them there, I
went out to search the car. When I couldn’t find them there, I returned to the
house to tell Karen I will need to return to the store, where I suspected I’d
left them. Then I found them, just where I had left them in the chair.
These
were the episodes that caused me to call the doctor to schedule a test for dementia.
He
told me, to my relief, that I had moderate cognitive impairment. But I also learned
there was nothing to stop me on this road to dementia. I can stave it off for a
while with plenty of daily exercise of both body ad mind, as well as a full
social life. I’ve taken up Wordle and other word games. And we are very
fortunate to live here in the Chateau Lake San Marcos, where our social life is
so full.
I
plan to continue with this blog for as long as I am able to. I know I’m not
alone in this adventure.